My late wife had a best friend whose friendship rivaled any as the benchmark of friendships. From elementary school through her death eight years ago, Naomi and Lisa were connected at the proverbial hip.
In the years since her death, Na continues to call me every few weeks to catch up. I’m pretty sure it’s the last act of friendship requested by Lisa and carried out by Na. She checks up on me, asks about the kids, and fills me in on her husband, son, parents, brother, and sister. I appreciate her calling. It’s as if she’s maintaining a thread through the universe and time whose story has expired, but no one told the cloth.
Two days ago, Na called to tell me her dad had died. I did my best to ask the right questions, say the right things, and console Na. Inside, I broke down, and despite my best efforts, some of it snuck through. The last thing I wanted on that call was for Na to console me. I did okay. At least until I hung up. I knew I now had two more calls to make. One to each of my children. They have known Na and her family their entire lives, and Na checks up on them as Lisa’s emissary, too. Those calls hurt even more. I know I didn’t do okay.
Na’s dad liked to talk. And once he started, short of a natural disaster, there was no way of exhausting the discussion. One of my memories of him was that at every party I attended at Na’s house, I always talked to her dad for hours. Everyone else seemed to drift away, leaving me alone. They chuckled. I was the fresh meat. Except I never felt stuck. There was never one conversation I had with him that I regretted. And I know why.
As the newcomer in a relationship as long-lasting and deep as Lisa had with Na (and her family), I was obviously the outsider. To be taken in by Na’s dad felt like acceptance. As if he thought, “If Lisa thinks he’s okay, he must be okay.” I felt like I belonged. Now, he may have been just as comfortable talking to a lamppost for hours on end, but I don’t regret those times talking with him. I have no idea what he thought of me, but he was genuine enough that even my dimwitted perceptive skills probably would have gleaned insincerity in him.
He was a bull who owned his own machinist shop. If asked, to a person, I know one of the first traits people would mention about him was how he was the hardest working person they knew. He would also do what he thought was right. Some would argue that his demeanor may have hindered his medical treatment over the past year. More likely, his hardheadedness kept him going. Let me explain.
Have you ever seen a football game where the running back is handed the ball, gains a few yards, and is tied up but not tackled by a defender? Then another defender makes a hit, and they still can’t take down the running back together. Then, two more join in as the running back’s legs keep moving him forward. Finally, either the pile collapses or the whistle is blown, ending the play. For Na’s dad, the play only ended when circumstances and the universe conspired to overwhelm him with too many medical priorities. He was a force any running back would envy.
As a hardheaded bull (like Lisa and her enormous personality), I know it was hard watching this once-strong man wither and finally succumb. I saw every decrease in Lisa’s health through the end. I did not see his decline. However, I know how hard witnessing it is and what a toll it takes on caregivers. He is at peace now, like Lisa. If there’s a heaven, Lisa greeted him with a smile, a hug, and a cutting joke. I hear him laughing, a cigar in one hand and a popsicle in the other.
If you’re so inclined, have a thought for Na and her family today. They lost a giant.
All of us, over the course of our lives, develop various interests. As a child, I wanted to be a baseball player or an artist. In college, thanks to my roommate, I developed an interest in the guitar. As an adult, I took to woodworking. And I have always liked to write. My woodworking skills, like my guitar playing, place me right in the middle of “I know enough to muddle through most things, but not enough to be any good.” My college roommate was left-handed, like me. He had a couple of guitars, and he was very good! He was also one of the kindest people I’ve ever met. He taught me a few barre chords, and I could follow along (if the song was simple and slow enough). In the 300 million years since I graduated, I confess, my playing hasn’t improved much. I know more chords and simple pentatonic riffs, and thanks to the internet can dumb down most songs to feel like I’m part of any number of great bands. I enjoy it, but let me assuage your fears by telling you I have no plans to perform outside of my little office, ever. You’re welcome. My family would probably prefer I take up the air guitar. It’s quieter.
Where guitar playing involves notes, chords, riffs, melody, and timing, woodworking involves something entirely different. Because I am not a pro, I am confronted on every project with the challenge of having to envision how to accomplish each successive step. And once I envision it, I invariably must adjust that plan to account for unforeseen problems, a lack of the “right” tool, and the added time required to visit Home Depot or Lowes for the 23rd time in a weekend.
I always feel like an imposter when I visit Home Depot, as if everyone is quietly judging me, eager to expose me as a hack and a fraud. Every time I’m in there, it seems three guys in the lumber department wearing work clothes that have obviously been on 300 or 400 jobs catch me out of the corner of their eyes just as a box of 100 #8 x 1 5/8” drywall screws I dropped scatter down aisle 17.
We all have those we look up to. As a kid, Pete Rose was the baseball player I wanted to be, and Leonardo Da Vinci was the artist. As a guitarist, I wanted to be David Gilmour from Pink Floyd. I always found his solos the most the most emotional and evocative solos. He speaks through his guitar. These are the people who drove me to be better. Not professional, but better. They sparked an interest in me to learn. In woodworking, it was Norm Abram. Like me, Norm is from Rhode Island. Like millions of others, I grew up on This Old House, and through several hosts, Norm was always the steady hand on the tiller. He was a teacher. Tom Silva always taught, too. His expertise in construction always showed an easier way to do something that amused the host. I learned what cripple studs were and why they were important. But Norm was the “Master Carpenter.” Maybe it was the title; however, when he spoke, it seemed to carry more gravitas. His New Yankee Workshop opened my eyes to furniture building and what a shop should look like, what tools should be in it (and what they do). And because of him, I wanted to make things out of wood. Furniture? Maybe
What Norm did on the New Yankee Workshop every week was always perfect. “I can do that!” I said to myself. What I quickly learned was that they never showed you the half hour it took the production assistants to set up the tool to make that 3-second cut. Mortise and tenon joints always fit perfectly. It took me an hour of trial and error (sometimes on my finished workpiece) to get close. Norm was always the vision of patience and safety. I can still hear his safety warning at the beginning of every episode in my head, “Before we get started, I’d like to take a moment to talk about shop safety. Be sure to read, understand, and follow all the safety rules that come with your power tools. Knowing how to use your power tools properly will greatly reduce the risk of personal injury. And remember this, there is no more important safety rule than to wear these, safety glasses.”
His experience, skill, and attention to detail, combined with meaningful explanations (and great camera work), hooked me every time. There were episodes where he made something that I didn’t particularly care about, however, despite my initial disappointment, I always found myself enthralled and eager to understand the next step of the project. I got to the point where I could anticipate the next step and the tool to be used. I loved it. Even if I didn’t have the tools to replicate the project.
And it sparked a new creative channel in me. I tried with my screwdriver, hammer, and lack of training to build things. It forced me to be patient (mostly because I had no idea what I was doing). Over the years, I’ve gotten a bit better and gained a few more tools, but still must go slow because I still have very little idea of what I’m doing. And if I’m working on a project and don’t show up to Home Depot for two days, they send out a search party. An army of orange-vested associates searching in a grid pattern across the parking lot and then my house.
I have a home office in which to perform my real job during the week. My wife had my old desk in her office but had a vision of what she really wanted. Lower cabinets, a butcher block countertop and desk surface, and uppers to the ceiling with crown molding. We researched cabinets and dove in. The cabinets were ready to assemble, and we tried to think out every other piece of prepainted wood I’d need to complete the job. We painted the walls, and then I took over the room. I put the cabinets together and ordered the butcherblock slab for the countertop and desk. I was very nervous about cutting it to fit. It was expensive, and I knew if I didn’t measure twice, I’d be cutting more than once or ordering a new slab. I could hear Norm in my head. “Measure twice, cut once.”
Each step of the process was laid out in my head, and with each step, there were questions about how to accomplish it. I sometimes took a couple of days playing it out in my head, envisioning the steps necessary and any impediments I might encounter. It was frustrating, necessary, and ultimately worth the time. I told my wife, “I can get you 98% of the way there. To get to 100%, you need to hire a professional. So, you’ll have to accept 2% being undercut, overcut, 2 degrees out of plumb, almost level, and sort of right.” I knew I was on the right track when it was only me who could see the tiny mistakes. She never saw them, no one did. I liked the challenge of thinking out the next steps and then overcoming the obvious missteps I’d take.
She also showed me a decorative shelving system she wanted in the corner opposite her wall of cabinets and desk. Again, there were challenges I would ruminate over for days before jumping in and getting it done. With one step left (putting up the shelves), I was anxious to see the finished product. I had sanded the wood, rounded over the edges, and polyurethaned the wood. All I had to do was cut the long piece into the actual shelves. I cut them and walked into the office, ready to nail and screw them into place. My wife started laughing. In my haste, I cut the shelves ½ inch too short. Without skipping a beat, my wife channeled Norm Abram. She said, “Measure twice, cut once.” Ouch. Back to Home Depot, back to sanding, rounding over, and polyurethaning. Then I measured three times, cut the shelves, and installed them.
Tony Bennett died recently, and Twitter (X?) was filled with kind words from those who knew him, thanking him for his body of work, kindness, artwork, and friendship. This happens every time a celebrity dies. I couldn’t help but notice how nice it would have been if folks thanked others while they could appreciate the sentiment.
I would never have attempted anything like that had it not been for Norm Abram and the This Old House/New Yankee Workshop. I don’t know Mr. Abram personally, but if I ever met him, I would thank him for being such a great teacher. And I think my wife would thank him, too!
“Necessita induce, e non diletto.” (“It is a necessity and not pleasure that compels us.”) – Dante Alighieri, The Divine Comedy, Inferno)
There may be droughts, but ultimately, the artist must create. Left alone, thoughts smolder, and a flame sparks.
The writer must give voice to thought, the artist must give voice to vision, and the singer must give voice to sound. The musician must give voice to the melody. The medium is different; however, the result, sometimes free-flowing, other times tortured, soars.
My daughter showed me a quote sometimes attributed to Ernest Hemingway (though it probably originated with Red Smith, Paul Gallico, or another earlier scribe) that reads, “Writing is easy. You simply sit down at the typewriter, open your veins, and bleed.”
What I write here is the result of the wrestling match inside my head bled onto the page (screen). Writing is, for me, cathartic. I write for me. Just me. I write to exorcise the demons occupying too much real estate inside my little brain. When I am bothered, angry, upset, happy, confused, enamored, penitent, wistful, nostalgic, depressed, disgusted, or (name the emotion), I can often only truly understand how I feel by wrestling with my thoughts on the page.
I am not alone.
“The impulse to write things down is a peculiarly compulsive one, inexplicable to those who do not share it, useful only accidentally, only secondarily, in a way that any compulsion tries to justify itself. I suppose that it begins or does not begin in the cradle.” – Joan Didion, Slouching Towards Bethlehem.
All creative people have this compulsion to understand. The lyricist and musician (sometimes the same person) are restricted far more than me by structure and rhyme, whereas I am only limited by coherence and cadence. So too, the painter, who must become an architect to effectively develop the vision they are compelled to reproduce on canvas.
I am fascinated by the creative process and the different paths inspiration takes through inspired people. These people are heroes to me. Not in the Marvel universe way or celebrity way, but in how they are compelled to produce, driven to evict the vision seen only in their mind and share it with others. I am fascinated when I listen to a piece of classical music and find a story developing inside my head played out by the various instruments. I wonder if that was the composer’s intent or if I’m just nuts.
I write because there is an overwhelming need to sit and purge what is ruminating deep inside. I don’t know what the end result will look like or even where I come down on various topics until I sit, research, and write it down. It is cathartic and oftentimes the healthier vent for sadness, disappointment, or anger.
I have witnessed this process within my own house in different ways. My daughter studied art in college. I watched, sometimes with tears in my eyes and a lump in my throat, as she painted Dorian Gray repeatedly. She reflected the pain she experienced watching her mother die of cancer over many years onto the canvas. Her body image issues spilled onto the canvas. She was compelled to exorcise these thoughts through her art. It pained me and fascinated me to watch. Like me, my son writes. His work is a mélange of Douglas Adams, Rod Serling, Christopher Marlowe, and Ian McEwan. He cloaks analogies in irreverent prose and biting satire. He, too, is compelled to exorcise these thoughts through his art.
“Don’t tell me the moon is shining; show me the glint of light on broken glass.” – Anton Chekhov
Another in our family also has this drive, this compulsion, my niece, Jackie Marchal. I call her my niece because, as my late wife was the only child of two only children, we joked that her family tree was more akin to a creeping vine. Anyway, my late wife’s cousin’s children, ergo my niece! She is a singer, lyricist, and musician. Recently graduating from Columbia after having been raised in NYC, I have witnessed her art mature with each successive song. I admit to not having seen any of her live performances in the city and have only recently focused on her burgeoning portfolio of music.
This past weekend, I worked on finishing a desk and putting on her music while I sanded, stained, and polyurethaned. The first thing that struck me was the effortless fluidity of her voice. Her voice floats. I have no better word for it. Despite not having an empty bourbon glass in my hand, I could almost see her voice floating throughout the garage as the rain beat down outside. I shuffled through many of her songs and then, and only then, listened to the words by playing them a second time. All artists pull from their personal lives. As I listened to the lyrics of each song, I wondered how much of what I was hearing was experienced and how much was storytelling. That may come from knowing the family. I generally don’t consider that when listening to other artists. The pain and the heartache in several of her songs compelled me to sit and write this because I once again saw (heard) the creative process demanding a voice. She is compelled to exorcise these thoughts through her art.
“Such sweet compulsion doth in music lie.” – John Milton, The Complete Poetry
They say stereotypes are often rooted in reality, a caricaturist’s reduction of whole and unique people. The tortured artist is one such trope. And while I often struggle with thoughts and sometimes need to organize them on paper to understand how I truly feel (and sometimes it is a tortuous journey), it is an exercise I cannot do without—no more than my daughter, son, or niece. The artist must create.
For more information on Samantha Thivierge, see her Instagram.
I want to take a moment and thank someone. Someone who, after all she’d been through, passed one more lesson on to someone needing a class.
Tamara (Lukowicz) O’Hara had every reason to be me. Every reason to be angry, pessimistic, defensive, and assuming, a person who only saw what was wrong with the world and never what was good. A victim. The war I saw my late wife Lisa wage against cancer scarred me eternally as sure as it took her life. I have guilt that will never be assuaged. It can never be mitigated despite logic and reason, regardless of the assurances from my children that my guilt is misplaced. I have bottled rage with no pressure relief valve. There is no one to complain to or in charge with whom to debate my points.
And I found myself bitter. Angry with the unfairness, inconsolable in my rage.
As a child, Tamara had childhood cancer. She battled it and beat it. She was Lisa’s cousin. I only met Tamara as a young adult after I began dating Lisa in the late 1980s. It was either a Thanksgiving at Lisa’s parent’s house or a Christmas Eve party at Lisa’s mom’s cousin’s apartment. I found her bubbly, engaging, and happy when I first met her. She greeted everyone, me included, with a smile and a story. Her parents and her sister were all there. The whole family was approachable and energetic. I took to them all fast. At the time, I think she was the only person I’d ever met who had survived cancer. Not that I ever asked. At that time, cancer was as foreign to me as hieroglyphics and certainly not a polite topic of dinner conversation.
Every time I saw Tamara, she was the same. I never once heard her complain about anything. Not the dinner, the people, the conversation, work, life, nothing. Ever. Over time, as I matured into marriage and had twins, her perpetual bubbliness I relegated to goofiness! She was goofy! Happy beyond all reason, charismatic seemingly without cause. And that’s when I first missed the opportunity to learn from her. She wasn’t goofy. She was alive in every way.
As we age, relationships fade, faltering, not through animosity, but as our lives are dominated by the mundane. Work consumes our days as we seek to purchase the bread our families eat at night. The kids’ kindergarten work morphs into helping them build a trebuchet for high school. And soon, or so it seems, after decades of this march, we see extended family members at weddings and funerals. We see ourselves taking another step up in the generational parade.
A corollary consequence of this separation is the paralysis of others in time. A different cousin of Lisa’s had a daughter who recently graduated from Columbia. I missed it! Without the periodic injection of news (touching base with that faction of the family), she was forever a student there. It is the mirror image of how we miss the small changes in those in our household. Those that have not seen them (or us) for a while notice the slow changes we miss.
And so it was with Tamara. She was somewhere out there, bubbly and happy. Except that was not how she was. She married in 2015, and I saw her in 2021 at Lisa’s mom’s funeral. She became ill again last November and endured procedures and pain I hope never to experience. She died Thursday at 53 years of age. Far too young for her shining light to be extinguished, leaving those who knew her to continue in a darker world.
I will see her family at the funeral. I will see again the familiar anguish, incomprehensible sense of loss, and appreciation that her struggle and pain are over. Her widower has lost a soulmate. Her parents have lost a child. Her sister has lost a part of herself. Cancer has again stolen one of the best of us. I have lost a belated teacher. A teacher I failed to learn from in life, but one whose message I hope to employ in the future.
Isolation became as much a pandemic as the COVID-19 virus that caused it. And the social paradigm shift left in its long wake continues to affect millions of people. Social pastimes such as going to the movies, going out to dinner, visiting friends and relatives, comedy clubs, concerts, art shows, vacations to amusement parks and bucket-list cities all foundered. And like the millions of virus victims, many of these venues and pastimes did not survive.
We were left to entertain ourselves at home. And some of us did this better than others. The American Journal of Emergency Medicine said domestic violence cases increased by 25% and 33% globally, with an increase in the United States by over 8%. In my house, crafts replaced excursions. It began when my daughter, Samantha, came to my house wearing a stylish three-ply mask she fashioned from a curtain. In what might have been a humorous episode of a sitcom (you fill in the blank), she proceeded to sew another mask at the dining room table while watching me try to do the same with her guidance. Ultimately, my finished product was less fashionable and (probably) less effective. Still, I wore it to the grocery store until better masks were readily available. I still have it.
And then there were the crafts. Let me back up. Pointillism is a method of painting developed by Georges Seurat and others in 1886. It is an offshoot of the impressionists (Monet, Manet, Cassatt, Degas, Pissarro, Renoir, and Cezanne). In pointillism, artists use dots of paint to form images. It was the precursor to pixels on televisions, monitors, and cell phones. Seurat’s most famous painting is A Sunday Afternoon on the Island of La Grande Jatte.
Incidentally, my son Cameron and daughter Samantha saw the 2017 revival of the Sondheim penned Sunday in the Park with George musical on Broadway; itself a fascinating statement on art, artists, people, humanity, and human interaction as the painting comes alive before the audience. Little did we know how human interaction would be a recipe for a lethal worldwide pandemic just three short years later. Ironically, Johnson & Johnson, supplier of one of the COVID-19 vaccines, was created in the same 1886 that Georges Surat created pointillism. Pfizer was formed in 1849. Thanks, Google.
Art proved to be the salve for my family and me. And as a corollary to my last post, art proved once again to forestall being lost. This time, while writing continued to provide me a venue to consolidate my disparate thoughts, “dipping dots” consumed our time and provided hours of entertainment (and a few sore necks!). Of course, they are not called “dipping dots.” Those are the frozen pebbles of ice cream found at hockey games and stadiums. I refer to the tiny, colorful plastic dots (or squares) on a sticky canvas.
My wife (and sometimes my two stepdaughters (although typically, they would start a project and we would finish it)) saw these projects devour hundreds of hours of quarantine and isolation during the pandemic. I also know every word to every pop song played on the radio over the last 50 years as we listened to these songs on a loop while working our dipping dots. These craft projects (I differentiate here between creating (art) and producing (crafts) so as not to offend artists who create original works) were terrific distractions from the horror of the pandemic and the schism of politics.
Both mindless and intoxicating, these projects consumed us. We couldn’t wait to finish working for the day so we could “dip dots.” Maybe it was a consequence of the work we each do. My wife works for an insurance company and spends most of her days in meetings. I live in Microsoft Excel spreadsheets, deep in the weeds of cells and formulas. Although we both work from home (I have worked exclusively from home since moving back to Rhode Island in 2016 while she was new to the concept, as were millions of others affected by the coronavirus), there was no tangible evidence of our daily efforts. She ends the call; I close the file. There is nothing to see, nothing to hold up as real progress or something that will exist beyond the next call or following report. Dipping Dots projects checked that box. It exists today, tomorrow, and always as a physical manifestation of effort.
Again, to create is to exist and to endure. Tiny plastic dots, pixels, or pointillism gave me a productive outlet during a worldwide pandemic and many enjoyable hours with my family. These are but a few of the many projects we completed during the lockdown. They were good times in an awful time, centering and fun while the world spun off its axis.
Can this be how it works? I’m 57 years old and see more life in the rearview mirror than the open road ahead. With that perspective, I find it’s become essential to reflect on what I’ve done with my time on this planet. Blissfully ignorant of the repercussions of news events growing up in bucolic suburbia, adulthood, parenthood, citizenship demanded my attention as I aged. I’ve experienced events no one wants. People summarize it as “life” when you see death. I’m not special. Just frustrated.
After the massacre at the movie theater in Aurora, CO, I began to write. Not with the expectation of affecting change, but rather to give my anger, my emotions, an outlet, an offramp for the toxic blood poisoning my body. I saw gun violence stealing a generation. While some social issues had moved the Overton Window, political intransigence (keep cashing the NRA’s checks!) and eventual American ennui accepted gun violence as baked into the American fabric in the name of “freedom.”
After the Sandy Hook Elementary School massacre in Newtown, CT, I began to speak. Surely, a tragedy of this scale would shock Americans (and politicians) out of their stupor. Nope! I talked to groups in Texas as the lone spokesperson for the Brady Campaign in Texas. The only one. That alone tells you all you need to know about the calculus of “I NEED my gun, dead kids and teachers be damned.” Thoughts, prayers, and sad face emojis flooded social media until America’s fruit fly attention span moved on to the latest “tragedy” affecting Kim Kardashian.
My anger peaked with the death of my wife. Fuck cancer makes a great tweet, a guttural reaction without consequence. Utterly suicidal and dying with my wife, I could not yell at the tumor. I took it out on God for a while (also useless) and even turned to God for a bit (utterly meaningless). There was no one to blame, no revenge to be had. No offramp for my anger.
And then Americans, in the obvious next step for a society that had abdicated all personal responsibility and suffered no consequences, elected a narcissistic moron president—a billionaire (if you believe him) speaking for the uneducated rubes. Merit and logic were dead. With each lie, with each crime, I expected consequences. None came. Robert Mueller fumbled the ball with no defenders anywhere near him. Facts were relegated to the trash bin. Tweets became governmental edicts. And I waited. Furious.
When I get angry (when I get down), it is because things should be easier. “Keep the simple things simple; the hard things are hard enough.” But nothing was easy. Changing a light bulb resulted in the glass bulb snapping off the metal base, a trip or two to Lowes, and a call to the electrician. Nothing was easy. Ultimately, I realized it was an absolute lack of control. There was nothing I could do about any of it. My wife was dead, guns were more important than life, freedom from fact and responsibility replaced actual democracy, and rabid evangelicals believed in Trump as the messiah. Stop the world; I want to get off.
And now we have Ukraine. Again, one man brings the world to the point of a world war—one man. Ukrainians are fighting to survive- as a nation and a people. “Denazifying” Ukraine? Really?
I’m reminded of Carl Sagan’s Pale Blue Dot speech as I watch an army destroy entire cities. Stepping back for a second, it seems bizarre that NATO and the UN watch the massacres with tepid financial penalties because Ukraine doesn’t belong to their club. It’s like a high school clique turning its back on a less cool student getting beaten up because they don’t wear the “right” jeans. I understand the political ramifications of engagement. But on a human level, it seems callous and impotent.
So here I am—no one special, poisoned with anger and unable to control or change anything. Hell, I can’t even watch baseball now! The billionaires are too busy fighting with the millionaires. I get the feeling that if aliens did visit earth, they’d look down and say, “Nah, they’re petulant adolescents with nascent technology and a penchant for killing each other. Keep driving.”
So, my clock continues to tick down, and I’m not ignorant enough for its promised bliss. I’ve read Viktor Frankl and Thomas Paine but still cannot find reason or acceptance. How do I accept all of this? How do I “let it go?” No, seriously, I’m asking.
My birthday was last Monday. This was the first birthday I’ve ever been alone. Yes, people wished me a happy birthday at work (in fact, they took me out to lunch), and I heard from several people in person and many people wished me a happy birthday on Facebook, but when I went home at the end of the day, I was alone. That was a first in a long year of firsts.
I have been alone a lot lately and I understand that is the nature of things at this point. Friends seem far away and while I have a spark that my life is beginning again, the sparks right now seem only to flicker and then fade. I am hoping some of them kindle and flame. I’ll keep going because as Winston Churchill said, “When you are going through hell, keep going.”
Things will change. I’ll be moving back to Rhode Island in June. I found a nice condo in East Greenwich big enough for me and the kids (who will be with me until they start graduate school). Getting back to Rhode Island will be going home. There is familiarity in it, even though I know nothing about East Greenwich. We will be close to family and friends once again and life will further kindle for me. I look forward to being home.
I know I need to start my life again. Whether that involves new hobbies or new people, I do not know at this point. I know that I want to get out of Texas. I want to leave all of the bad memories here and start anew. A friend of mine told me that I needed to find a meaningful life whether that involves happiness or not because it will be rich with significance. I hope I do have a meaningful life rich with significance, but I also hope it involves some happiness.
Soon, I will be putting the house here in Texas on the market and begin packing all of the belongings Lisa and I took to Texas to fight her cancer. I do not consider it a lost battle. We gained seven years beyond her initial horrific diagnosis. I still marvel and shudder at what she endured to survive those seven years. More blood sticks that I can count, radiation burns, the barbaric side effects of systemic chemotherapy, radical surgery, wild clinical trials, nausea, neuropathy, headaches, coughs, colds, trips to the emergency room on holidays, and she waged this all-out war with an easy going manner to everyone else around her.
I still want to talk to her. I still reach for my phone to text her something funny. I still miss her every single day. When I’m especially down, I hear her in my head telling me to get on with my life. And so I try, try, try again. I am alone, but I try not to be lonely.
I think the ultimate kindling is friendship and I am grateful for all of my friends. The ultimate flame is meaningful significance and I hope to be living that life. Happiness would pour gasoline on that fire.
Publilius Syrus in the first century B.C. wrote “when Fortune flatters, she does it to betray.” Plutarch reinterpreted this as “I see the cure is not worth the pain.” Somewhere over the past two thousand plus years we have lost the connection between humanity and the humane.
Setting religion aside and ignoring the politics and ethics of Dr. Kevorkian, it is, none the less, barbaric how we treat our loved ones at the end of their lives.
We have somehow bridged the moral abyss with compassion for our beloved pets by “humanely” putting our beloved pets out of their senseless misery, ending their meaningless pain, answering their pleading eyes with the selfless, heartrending compassion of euthanasia.
We have somehow sanitized capital punishment of the worst criminals from fatal and barbaric corporal punishment to a “humane” (although still debatably barbaric) dream-like sleep out of existence.
And yet, we allow our loved ones to face “natural” death filled with a fear, pain and confusion making anything that happened at Abu Ghraib look like Walt Disney World.
This suffering is multifaceted. Of course, there is the physical pain, which is no better controlled today than it was 50 years ago. The opioids still rule as the best we have to offer. The problem is that they are systemic, meaning that they travel throughout the entire body. If the pain is in the hip, the hip gets the morphine, but so, too, do the little finger, the ear lobe and the brain. The result is that the little finger and ear lobe are no better or worse, the hip suffers an incomplete relief of pain and the brain suffers the confusion, paranoia, nausea and narcolepsy unnecessary to treatment. This is the best medicine has to offer in 2014? The other suffering it brings is to the family members who must endure watching the physical suffering of those they love hampered by the incomplete relief of pain. Meaningless suffering is the worst kind. Love of another means the willingness to shoulder their burden. The helplessness felt by the family member watching their loved one jerk in pain or crying out as they try to move them or comfort them is an indelible stain on their soul.
The suicidal mission of cancer adds to the frustration. Bent on destroying its host, even at its own annihilation, cancer never rests. To paraphrase Siddhartha Mukherjee from his book The Emperor of All Maladies, cancer cuts the brake lines of some cells and jams the gas pedals of others, stopping the natural cell regulation process and sending the cancer cells into a proliferating frenzy steamrolling every other cell in its path. In his or her clearer moments, so too, the cancer patient undergoes a civil war; one side, engrained in all of us, pulls us to live, to continue fighting, while another force, armed with logic, understanding and ultimately love, forces the patient to begin facing the inevitable truth with no regrets and peace.
In his book Man’s Search for Meaning, concentration camp survivor and psychologist Victor Frankl describes inmates of the camps as surviving long stretches if they could find meaning in their suffering. Some held on to the hope of outlasting the Nazis and returning to their loved ones (should any of them have survived), others found peace looking up at the sky and imagining conversations with their loved ones wherever they might then have been. Life was worth living if they held a kernel of meaning in their suffering.
I have searched and considered and yet find no meaning in the suffering loved ones endure at the end of their lives given the current state of medicine. Pain is pain and on a scale of 1 to 10, anything above a 1 means the medical field has failed. The root word of both humane and humanity is human, from the Latin humanus. However, we reserve those words for our treatment of pets and prisoners, not our loved ones. For them, and for ourselves, it is inhuman what we put them through, for them and for us it is nothing short of torture.
Publilius Syrus in the first century B.C. wrote “when Fortune flatters, she does it to betray.” Plutarch reinterpreted this as “I see the cure is not worth the pain.” Somewhere over the past two thousand plus years we have lost the connection between humanity and the humane.
Thoughts at Large 