Without You, Again

Wedding Photo

We were denied our 26th anniversary two years ago when cancer took you a week before. Now I’ve had to endure what should have been our 27th and 28th without you. If our vows said “until death do us part,” why does it feel as though part of me died when cancer took you? Happy anniversary, Lisa. I’m doing the best I can without you. Thank goodness for the kids. And fuck cancer.

365 Paper Cuts

 

bleeding heart

“I have not failed. I’ve just found 10,000 ways that won’t work.”     ― Thomas A. Edison

It was one year ago tonight that my best friend died. God, it hurts to write that. It seems like a lifetime ago and also as if it happened last night. Not a day goes by that I don’t think of her. I rest my hand on her pillow every night before praying that sleep will gently take me away to her, but I never dream, about her or anything else. I have come a long way since that night in September, but in other ways, I feel I have never left that room. The kids and I have experienced the “year of firsts” without Lisa as if this is some magical milestone beyond which grief is forbidden to pass. I miss so much about her that my heart aches just thinking of the reasons.

I miss her laugh. I miss her smile. I miss her voice. I miss her nose. I miss her driving. I miss her honesty. I miss her eyes. I could go on for as long as my fingers can pass over this keyboard. Edison’s quote seem particularly applicable today because I don’t feel that I’ve survived one year without Lisa as much as I have endured 365 daily paper cuts without her that will never heal.

 

“Courage is being scared to death, but saddling up anyway.”     ― John Wayne

One thing I do not miss is the suffering she had to endure. I taped the above quote on the refrigerator of the house we rented in Texas during her first round of treatment. I put it on the fridge for her to see, but now I see that it was meant for me. From chemotherapy to surgery to radiation, she never questioned or hesitated. She enthusiastically embraced every option offered to her until her physician assistant (in tears) told her there were no more options. Lisa was prepared to do more, but medicine had failed her. I look back at that quote now and see that the courage I wanted her to embrace is now exactly what I must adopt to survive her death and carry on.

My brother was in the hospital recently for treatment of a minor infection. It was the first time I’d visited a hospital since Lisa’s death. I hadn’t given any thought to how visiting a hospital would affect me. It was just what you do when a family member is in the hospital. My children were both concerned how visiting the hospital would affect me. As soon as I walked through the doors, all of the emotions swarmed me. Fortunately, my brother was well enough to be discharged the next day. However, shortly after that, my mother in law was taken to the hospital because she bumped her head when she fell. It was nothing serious, she was only taken to the hospital due to a state regulated precautionary requirement, but it required me visiting another hospital in the same week. As I sat there with her, waiting for her discharge papers, I can’t tell you how much I wanted to get out of there. Nothing happens quickly in a hospital and the memories exposed while sitting there were not healthy. Everything took me back to Lisa and her seven years of treatment. After having called M.D. Anderson a second home during all of her cancer treatment, I can’t conceive of a situation where all of the hospital memories won’t come flooding back to hit me in the face. We knew every corner of that hospital and felt like unofficial ambassadors because we ended up helping newcomers so often. In the end, there was no longer anything they could do for her so we both went home where she would die. Thoughts of hospitals paralyze me now.

 

“Sometimes even to live is an act of courage.”     ― Seneca

Lisa’s suffering is over, and we’ve had a year to establish a life, living only with her memory. We have made progress because life goes on. The kids have graduated from college. We have moved back to Rhode Island. We live in a condo in an area we’re not familiar with but which is close enough to family and familiarity to provide some comfort. However, the idea of starting a life without her is at times challenging and at other times seemingly impossible. I still feel guilty for living. I feel guilty for never dreaming about her. I feel guilty for not making the most of this time with my kids, who will be gone this time next year. If our roles were reversed, I could imagine Lisa doing much better than I am now. I feel as if I’ve aged 50 years in the past 365 days. But life goes on, and I am trying to do the best I can. I hope the next year sees me and the kids continue to develop a new “normal” where we can laugh about the good times and not dwell on the bad; where we can think of Lisa as the beautiful, energetic whirlwind she was, full of flowing blond hair and a joie de vivre rather than the pained shell we saw at the end. I’ve survived 365 daily paper cuts without her. The wound will never heal but hopefully, the nerve endings will dull a bit. This week will be particularly strenuous. In addition to today’s commemoration, the kids’ birthday is Tuesday, and Lisa and my anniversary would have been Friday. At least I have the kids to lean on. I treasure my children and am so glad to have them around for the time that I do. They have gotten me this far. I can’t imagine where I’d be without them.

I’m ending this post with a poem by Hermann Hesse titled Stages. I hope you appreciate its message and hug your loved ones tighter today.

 

As every flower fades and as all youth

Departs, so life at every stage,

So every virtue, so our grasp of truth,

Blooms in its day and may not last forever.

Since life may summon us at every age

Be ready, heart, for parting, new endeavor,

Be ready bravely and without remorse

To find new light that old ties cannot give.

In all beginnings dwells a magic force

For guarding us and helping us to live.

Serenely let us move to distant places

And let no sentiments of home detain us.

The Cosmic Spirit seeks not to restrain us

But lifts us stage by stage to wider spaces.

If we accept a home of our own making,

Familiar habit makes for indolence.

We must prepare for parting and leave-taking

Or else remain the slave of permanence.

Even the hour of our death may send

Us speeding on to fresh and newer spaces,

And life may summon us to newer races.

So be it, heart: bid farewell without end.

Gold

Gold barsWe live in a disposable economy; neither secret nor revelation there! We also live in a society where we, through technology and media, demand instant gratification and are easily bored with work and distracted by shiny objects. It is easier to walk away from a problem than wrestle with it, but seldom right. It is easier to think of oneself rather than another, but rarely without consequence. We eschew effort as well as personal responsibility and popular culture celebrates this behavior. The existentialist will tell you that we are all, in fact, islands; that no one can truly appreciate what we, as individuals, think or feel. At the same time, however, we are all cogs in the various and intricate machinery we know as society.

Many of us, either through nature or nurture, seek to live our lives with the company of another; to see if the teeth on our cog mesh with those of another’s, thereby (it is hoped) creating a larger, stronger organism. It is often a disruptive union, calling on an island to expose its perceived weaknesses to another in hopes of reuniting Pangaea and weathering life’s storms together. Marriage forces two individuals to add the moniker “couple” to themselves, making each participant defend the ethos of the other before society while at the same time trying to maintain their own sense of self. And therein, lies one of the two reasons these unions fail. Statistics tell us that half of marriages fail. Maybe “fail” is not the right word. When reduced to basics, the individual cogs simply do not work together, despite love’s miasma and an individual’s sometimes tortuous effort. There are many different reasons for these failures, not all of them assignable to one party or the other. However, “facts is facts.” According to the 2010 census, only 82% of Americans who married reached their 5 year anniversary. Sixty-five percent made it to 10 years. Fifty-two percent made it to 15 years.

Of course, divorce is not the only reason that couples fail to reach these milestones. The other way that marriages end is through the death of one partner. You needn’t look at an actuarial table to see that as people get older the overall number of them still living decreases. You may have graduated 43rd in your high school class, but with enough luck and a genetic lottery winning ticket, someday you will be 1st! George Burns wasn’t the tallest in his high school at graduation, but by living to 99 he assumed that title from all those who were taller but preceded him in death. Consequently, the number of couples reaching higher milestones drops significantly as the years pass. Only 33% of couples reach their 25th anniversary, again, through a combination of avoiding death and divorce. Only 20% of couples reach their 35th anniversary. Of course, while only two things can end a marriage, either divorce or death, not even death can hold sway over love. The remaining cog may still turn as part of society but it forever misses the other.

This September, I will celebrate my 25th wedding anniversary with the woman whose cog fit mine; who softened the rough teeth of my cog and kept our machine moving where teeth on my cog were missing or broken. To reach such a height is to know the wonder, pain, strength and suffering that sharing your life with another affords. Experience can neither be taught nor bequeathed and, for those who make it through, would not be traded for all the world’s gold. The tapestry we have woven together, comprised of the countless threads we call memories, warms me, comforts me and leads me toward tomorrow’s challenges armed with confidence.

Tomorrow also marks a milestone fewer than 5% of couples attain. My parents celebrate their 50th wedding anniversary. In a society where we are encouraged to trade our gold for cash, it is nice to see a couple whose determination to face life’s challenges as one reach their Golden Anniversary, a milestone more treasured than treasure; something forged in life’s furnace like no one else’s, answerable to no one else and more precious than cash. No life is easy, no journey without challenges, but it is the challenges that create character and we celebrate couples who have weathered these challenges and persevered. Thanks to my wife, and the story we are still writing, and my parents whose own book is now gold gilded, I understand a quote from Dr. Seuss today better than yesterday and hope to appreciate it better tomorrow than today.

 “You know you’re in love when you can’t fall asleep because reality is finally better than your dreams.”

Happy anniversary to my parents and Lisa, I love you.